Original article
Prevalence of Dystrophic Epidermolysis Bullosa in Spain: A Population-Based Study Using the 3-Source Capture–Recapture Method. Evidence of a Need for Improvement in Care
Prevalencia de la epidermólisis ampollosa distrófica en España: estudio poblacional usando el método de captura-recaptura con 3 fuentes de datos. Evidencia de la necesidad de mejora en la atención sociosanitaria
A. Hernandez-Martína,
, B. Araneguib, M.J. Escámezc,d, R. de Lucase, A. Vicentef, E. Rodríguez-Díazg, J. Bernabeu-Wittelh, R. Gonzalez-Hermosai, V. García-Patosj, M. Ginartek, J.M. Mascaró Jr.l, C. Correderam, E. Baselgan, J.L. Santiagoo, A. Chavesp, C. Románq, M. Évoler, A. Martin-Santiagos, A. Torreloa, M. del Ríoc,d..., M. Feitod,e, M.A. Gonzalez-Enseñatf, G. Romeroo, E. Morcillo-Makowt, I. Abaituau, I. García-DovalvVer más
Autor para correspondencia
a Department of Dermatology, Hospital Infantil del Niño Jesús, Madrid, Spain
b Department of Dermatology, Clínica Universitaria de Navarra, Madrid, Spain
c Regenerative Medicine Unit, CIEMAT and Department of Bioengineering, Universidad Carlos III de Madrid (UC3M), Madrid, Spain
d Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER), Valencia, Spain
e Department of Dermatology, Hospital La Paz, Madrid, Spain
f Department of Dermatology, Hospital Sant Joan de Deu, Barcelona, Spain
g Department of Dermatology, Hospital Cabueñes, Gijón, Spain
h Department of Dermatology, Hospital Virgen del Rocío, Sevilla, Spain
i Department of Dermatology, Hospital de Cruces, Bilbao, Spain
j Department of Dermatology, Hospital Vall D’Hebron de Barcelona, Spain
k Department of Dermatology, Hospital Clínico Universitario de Santiago de Compostela, Santiago de Compostela, Spain
l Department of Dermatology, Hospital Clínic, Barcelona, Spain
m Department of Dermatology, Hospital Miguel Servet, Zaragoza, Spain
n Department of Dermatology, Hospital Santa Creu y Sant Pau, Barcelona, Spain
o Department of Dermatology, Hospital de Ciudad Real, Spain
p Department of Dermatology, Hospital Infanta Cristina, Badajoz, Spain
q Department of Dermatology, Complejo Hospitalario de Salamanca, Spain
r Department of Dermatology, Hospital La Fe, Valencia, Spain
s Department of Dermatology, Hospital Son Dureta, Palma de Mallorca, Spain
t Director of DEBRA Spain, Málaga, Spain
u Rare Diseases Research Institute, Instituto de Salud Carlos III, Madrid, Spain
v Research Unit, Fundacion Academia Española de Dermatologia, Madrid, Spain
Ver másLeído
8876
Vecesse ha leído el artículo
2887
Total PDF
5989
Total HTML
| año/Mes | Html | Total | |
|---|---|---|---|
| 2025 6 | 109 | 48 | 157 |
| 2025 5 | 218 | 56 | 274 |
| 2025 4 | 208 | 30 | 238 |
| 2025 3 | 177 | 34 | 211 |
| 2025 2 | 235 | 44 | 279 |
| 2025 1 | 113 | 31 | 144 |
| 2024 12 | 100 | 34 | 134 |
| 2024 11 | 100 | 64 | 164 |
| 2024 10 | 88 | 44 | 132 |
| 2024 9 | 63 | 37 | 100 |
| 2024 8 | 91 | 56 | 147 |
| 2024 7 | 74 | 37 | 111 |
| 2024 6 | 106 | 49 | 155 |
| 2024 5 | 73 | 36 | 109 |
| 2024 4 | 70 | 34 | 104 |
| 2024 3 | 76 | 29 | 105 |
| 2024 2 | 76 | 35 | 111 |
| 2024 1 | 69 | 34 | 103 |
| 2023 12 | 75 | 22 | 97 |
| 2023 11 | 71 | 29 | 100 |
| 2023 10 | 64 | 35 | 99 |
| 2023 9 | 95 | 27 | 122 |
| 2023 8 | 72 | 44 | 116 |
| 2023 7 | 100 | 53 | 153 |
| 2023 6 | 88 | 28 | 116 |
| 2023 5 | 59 | 27 | 86 |
| 2023 4 | 57 | 21 | 78 |
| 2023 3 | 74 | 31 | 105 |
| 2023 2 | 51 | 29 | 80 |
| 2022 1 | 55 | 31 | 86 |
| 2022 12 | 55 | 49 | 104 |
| 2022 11 | 20 | 24 | 44 |
| 2022 10 | 31 | 26 | 57 |
| 2022 9 | 27 | 31 | 58 |
| 2022 8 | 36 | 35 | 71 |
| 2022 7 | 31 | 45 | 76 |
| 2022 6 | 43 | 37 | 80 |
| 2022 5 | 68 | 37 | 105 |
| 2022 4 | 71 | 40 | 111 |
| 2022 3 | 110 | 69 | 179 |
| 2022 2 | 70 | 44 | 114 |
| 2021 1 | 70 | 44 | 114 |
| 2021 12 | 63 | 39 | 102 |
| 2021 11 | 60 | 48 | 108 |
| 2021 10 | 111 | 61 | 172 |
| 2021 9 | 46 | 43 | 89 |
| 2021 8 | 57 | 26 | 83 |
| 2021 7 | 59 | 38 | 97 |
| 2021 6 | 58 | 35 | 93 |
| 2021 5 | 74 | 34 | 108 |
| 2021 4 | 87 | 53 | 140 |
| 2021 3 | 79 | 43 | 122 |
| 2021 2 | 77 | 31 | 108 |
| 2020 1 | 65 | 28 | 93 |
| 2020 12 | 46 | 33 | 79 |
| 2020 11 | 33 | 25 | 58 |
| 2020 10 | 59 | 26 | 85 |
| 2020 9 | 30 | 23 | 53 |
| 2020 8 | 33 | 17 | 50 |
| 2020 7 | 63 | 22 | 85 |
| 2020 6 | 44 | 20 | 64 |
| 2020 5 | 42 | 39 | 81 |
| 2020 4 | 37 | 19 | 56 |
| 2020 3 | 29 | 19 | 48 |
| 2020 2 | 3 | 13 | 16 |
| 2020 1 | 0 | 13 | 13 |
| 2019 12 | 2 | 10 | 12 |
| 2019 11 | 0 | 1 | 1 |
| 2019 10 | 0 | 1 | 1 |
| 2019 9 | 4 | 2 | 6 |
| 2019 8 | 0 | 3 | 3 |
| 2019 7 | 0 | 3 | 3 |
| 2019 6 | 2 | 9 | 11 |
| 2019 5 | 0 | 15 | 15 |
| 2019 4 | 1 | 9 | 10 |
| 2019 3 | 2 | 9 | 11 |
| 2019 2 | 0 | 3 | 3 |
| 2019 1 | 3 | 0 | 3 |
| 2018 12 | 2 | 6 | 8 |
| 2018 11 | 3 | 0 | 3 |
| 2018 10 | 2 | 0 | 2 |
| 2018 9 | 4 | 0 | 4 |
| 2018 5 | 0 | 4 | 4 |
| 2018 4 | 0 | 1 | 1 |
| 2018 3 | 8 | 0 | 8 |
| 2018 2 | 53 | 4 | 57 |
| 2018 1 | 35 | 13 | 48 |
| 2017 12 | 40 | 8 | 48 |
| 2017 11 | 37 | 10 | 47 |
| 2017 10 | 34 | 4 | 38 |
| 2017 9 | 22 | 25 | 47 |
| 2017 8 | 33 | 12 | 45 |
| 2017 7 | 34 | 13 | 47 |
| 2017 6 | 41 | 35 | 76 |
| 2017 5 | 21 | 19 | 40 |
| 2017 4 | 24 | 17 | 41 |
| 2017 3 | 17 | 19 | 36 |
| 2017 2 | 33 | 15 | 48 |
| 2016 1 | 41 | 19 | 60 |
| 2016 12 | 55 | 9 | 64 |
| 2016 11 | 46 | 10 | 56 |
| 2016 10 | 45 | 24 | 69 |
| 2016 9 | 83 | 18 | 101 |
| 2016 8 | 73 | 13 | 86 |
| 2016 7 | 37 | 2 | 39 |
| 2016 6 | 5 | 5 | 10 |
| 2016 5 | 10 | 4 | 14 |
| 2016 4 | 10 | 5 | 15 |
| 2016 3 | 11 | 10 | 21 |
| 2016 2 | 13 | 1 | 14 |
| 2015 1 | 10 | 13 | 23 |
| 2015 12 | 13 | 15 | 28 |
| 2015 11 | 5 | 12 | 17 |
| 2015 10 | 5 | 9 | 14 |
| 2015 9 | 4 | 8 | 12 |
| 2015 8 | 7 | 3 | 10 |
| 2015 7 | 25 | 6 | 31 |
| 2015 6 | 16 | 5 | 21 |
| 2015 5 | 38 | 5 | 43 |
| 2015 4 | 23 | 4 | 27 |
| 2015 3 | 13 | 7 | 20 |
| 2015 2 | 15 | 4 | 19 |
| 2015 1 | 11 | 5 | 16 |
| 2014 12 | 11 | 2 | 13 |
| 2014 11 | 7 | 5 | 12 |
| 2014 10 | 15 | 8 | 23 |
| 2014 9 | 5 | 4 | 9 |
| 2014 8 | 7 | 5 | 12 |
| 2014 7 | 6 | 6 | 12 |
| 2014 6 | 17 | 6 | 23 |
| 2014 5 | 14 | 9 | 23 |
| 2014 4 | 9 | 4 | 13 |
| 2014 3 | 10 | 4 | 14 |
| 2014 2 | 9 | 5 | 14 |
| 2014 1 | 6 | 3 | 9 |
| 2013 12 | 8 | 2 | 10 |
Mostrar todo
