Original article
Design and Validation of a Questionnaire to Measure Treatment Satisfaction in Patients With Moderate-to-Severe Psoriasis: the NEODERMA Study
Diseño y validación de un cuestionario para medir la satisfacción con el tratamiento del paciente con psoriasis moderada y grave: estudio NEODERMA
M. Riberaa,
, E. Daudénb, L. Puigc, V. García-Patos Brionesd, J.M. Herranze, X. Bordasf, F. Vanaclochag, on behalf of the NEODERMA Study Group
Autor para correspondencia
a Servicio de Dermatología, Hospital Universitari de Sabadell, Corporació Parc Taulí, Sabadell, Barcelona, Spain
b Servicio de Dermatología, Hospital de la Princesa, Madrid, Spain
c Servicio de Dermatología, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain
d Servicio de Dermatología, Hospital de la Vall d’Hebron, Barcelona, Spain
e Servicio de Dermatología, Hospital Infanta Leonor, Madrid, Spain
f Servicio de Dermatología, Hospital de Bellvitge, L’Hospitalet de Llobregat, Barcelona, Spain
g Servicio de Dermatología, Hospital 12 de Octubre, Madrid, Spain
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The instrument consisted of 12 items scored on a 5-point Likert scale with scores from 0 (very satisfied) to 5 (very unsatisfied), generating a total score of 0 to 48. Patients completed the questionnaire at baseline and then at 3-, 6-, 9-, and 12-month follow-up. At each visit, data were also collected on the Psoriasis Area and Severity Index (PASI), treatment adherence (Morisky-Green questionnaire), and overall treatment satisfaction on a Visual Analogue Scale (VAS) from 0 to 100.</p> <span class="elsevierStyleSectionTitle">Results</span><p id="spar0010" class="elsevierStyleSimplePara elsevierViewall">A total of 423 patients were included in the study and 68% completed 12 months of follow-up. Responses were provided to all items in 98.8% of cases. There was a weak correlation between changes in treatment satisfaction on the SSTPQ and changes in PASI score (r=0.38 to 0.33); in contrast, there were strong correlations with changes in the VAS score for overall treatment satisfaction (r=–0.75 to –0.81). Good internal consistency was observed (Cronbach α=0.92). The intraclass correlation coefficient was 0.89, with a mean difference in score at 3- and 6-month follow-up of 0.07.</p> <span class="elsevierStyleSectionTitle">Conclusions</span><p id="spar0015" class="elsevierStyleSimplePara elsevierViewall">The results obtained suggest that the SSTPQ is a feasible, valid, and reliable tool for the assessment of treatment satisfaction in patients with moderate-to-severe psoriasis.</p>" ] "es" => array:2 [ "titulo" => "Resumen" "resumen" => "<span class="elsevierStyleSectionTitle">Introducción y objetivos</span><p id="spar0020" class="elsevierStyleSimplePara elsevierViewall">El objetivo del estudio fue diseñar y evaluar la validez, fiabilidad y sensibilidad al cambio de un cuestionario de satisfacción del tratamiento para el paciente con psoriasis moderada y grave, denominado CESTEP (Cuestionario Español de Satisfacción de Tratamiento en Psoriasis).</p> <span class="elsevierStyleSectionTitle">Pacientes y métodos</span><p id="spar0025" class="elsevierStyleSimplePara elsevierViewall">Se diseñó un estudio observacional, prospectivo, naturalístico y multicéntrico. El cuestionario estaba formado por 12 ítems, cada uno de los cuales se valoraba con una escala de tipo Likert con respuestas puntuables de 0 (muy satisfecho) a 5 (muy insatisfecho) (puntuación total de 0 a 48). Los pacientes cumplimentaron el cuestionario de satisfacción en la visita basal y a los 3, 6, 9 y 12 meses de seguimiento. En cada visita se recogieron también las variables clínicas (índice PASI), la adherencia con el tratamiento (cuestionario Morisky-Green) y la valoración global de la satisfacción con el tratamiento mediante una escala analógica visual (EAV) de 0 a 100.</p> <span class="elsevierStyleSectionTitle">Resultados</span><p id="spar0030" class="elsevierStyleSimplePara elsevierViewall">Se incluyeron un total de 423 pacientes, de los cuales el 68% finalizaron los 12 meses de seguimiento. El 98,8% de los pacientes completaron todas las preguntas del cuestionario. Los cambios en el cuestionario de satisfacción y en el índice PASI durante el estudio se correlacionaron de manera baja (r de 0,38 a 0,33), pero se observaron, en cambio, correlaciones altas con los cambios en la EAV de satisfacción (<span class="elsevierStyleItalic">r</span> de −0,75 a −0,81). Se obtuvo una buena consistencia interna (α de Cronbach de 0,92). El coeficiente de correlación intraclase era de 0,89, con una diferencia media en las puntuaciones, entre la visita a los 3 meses y a los 6 meses de 0,07 puntos.</p> <span class="elsevierStyleSectionTitle">Conclusiones</span><p id="spar0035" class="elsevierStyleSimplePara elsevierViewall">Los resultados obtenidos indican que el cuestionario CESTEP para la evaluación de la satisfacción del tratamiento en pacientes con psoriasis moderada y grave puede ser utilizado para tal finalidad, ya que se ha mostrado factible, válido y fiable.</p>" ] ] "NotaPie" => array:1 [ 0 => array:2 [ "etiqueta" => "◊" "nota" => "<p class="elsevierStyleNotepara">See Appendix 1 for a list of the members of the NEODERMA Study Group.</p>" ] ] "bibliografia" => array:2 [ "titulo" => "References" "seccion" => array:1 [ 0 => array:2 [ "identificador" => "bibs0005" "bibliografiaReferencia" => array:28 [ 0 => array:3 [ "identificador" => "bib1" "etiqueta" => "1." 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| año/Mes | Html | Total | |
|---|---|---|---|
| 2024 Noviembre | 5 | 12 | 17 |
| 2024 Octubre | 71 | 62 | 133 |
| 2024 Septiembre | 56 | 33 | 89 |
| 2024 Agosto | 84 | 68 | 152 |
| 2024 Julio | 54 | 39 | 93 |
| 2024 Junio | 56 | 45 | 101 |
| 2024 Mayo | 53 | 45 | 98 |
| 2024 Abril | 47 | 46 | 93 |
| 2024 Marzo | 48 | 33 | 81 |
| 2024 Febrero | 45 | 40 | 85 |
| 2024 Enero | 36 | 60 | 96 |
| 2023 Diciembre | 35 | 35 | 70 |
| 2023 Noviembre | 46 | 49 | 95 |
| 2023 Octubre | 41 | 45 | 86 |
| 2023 Septiembre | 34 | 30 | 64 |
| 2023 Agosto | 18 | 19 | 37 |
| 2023 Julio | 30 | 64 | 94 |
| 2023 Junio | 36 | 32 | 68 |
| 2023 Mayo | 31 | 28 | 59 |
| 2023 Abril | 28 | 25 | 53 |
| 2023 Marzo | 21 | 20 | 41 |
| 2023 Febrero | 21 | 16 | 37 |
| 2023 Enero | 27 | 37 | 64 |
| 2022 Diciembre | 28 | 49 | 77 |
| 2022 Noviembre | 14 | 30 | 44 |
| 2022 Octubre | 20 | 23 | 43 |
| 2022 Septiembre | 17 | 67 | 84 |
| 2022 Agosto | 15 | 69 | 84 |
| 2022 Julio | 14 | 40 | 54 |
| 2022 Junio | 11 | 19 | 30 |
| 2022 Mayo | 20 | 54 | 74 |
| 2022 Abril | 25 | 43 | 68 |
| 2022 Marzo | 17 | 53 | 70 |
| 2022 Febrero | 33 | 46 | 79 |
| 2022 Enero | 35 | 49 | 84 |
| 2021 Diciembre | 26 | 66 | 92 |
| 2021 Noviembre | 39 | 95 | 134 |
| 2021 Octubre | 34 | 87 | 121 |
| 2021 Septiembre | 30 | 81 | 111 |
| 2021 Agosto | 39 | 79 | 118 |
| 2021 Julio | 23 | 49 | 72 |
| 2021 Junio | 22 | 48 | 70 |
| 2021 Mayo | 20 | 26 | 46 |
| 2021 Abril | 47 | 58 | 105 |
| 2021 Marzo | 76 | 22 | 98 |
| 2021 Febrero | 43 | 40 | 83 |
| 2021 Enero | 22 | 28 | 50 |
| 2020 Diciembre | 26 | 31 | 57 |
| 2020 Noviembre | 21 | 19 | 40 |
| 2020 Octubre | 11 | 9 | 20 |
| 2020 Septiembre | 17 | 10 | 27 |
| 2020 Agosto | 22 | 31 | 53 |
| 2020 Julio | 15 | 18 | 33 |
| 2020 Junio | 14 | 19 | 33 |
| 2020 Mayo | 29 | 22 | 51 |
| 2020 Abril | 31 | 19 | 50 |
| 2020 Marzo | 53 | 32 | 85 |
| 2020 Febrero | 3 | 1 | 4 |
| 2020 Enero | 0 | 9 | 9 |
| 2019 Diciembre | 0 | 23 | 23 |
| 2019 Noviembre | 0 | 3 | 3 |
| 2019 Octubre | 0 | 2 | 2 |
| 2019 Septiembre | 0 | 10 | 10 |
| 2019 Agosto | 0 | 6 | 6 |
| 2019 Julio | 0 | 19 | 19 |
| 2019 Junio | 0 | 8 | 8 |
| 2019 Mayo | 1 | 48 | 49 |
| 2019 Abril | 0 | 5 | 5 |
| 2019 Marzo | 0 | 13 | 13 |
| 2018 Febrero | 10 | 2 | 12 |
| 2018 Enero | 18 | 6 | 24 |
| 2017 Diciembre | 15 | 8 | 23 |
| 2017 Noviembre | 21 | 1 | 22 |
| 2017 Octubre | 19 | 5 | 24 |
| 2017 Septiembre | 19 | 7 | 26 |
| 2017 Agosto | 19 | 9 | 28 |
| 2017 Julio | 28 | 13 | 41 |
| 2017 Junio | 20 | 18 | 38 |
| 2017 Mayo | 15 | 4 | 19 |
| 2017 Abril | 28 | 11 | 39 |
| 2017 Marzo | 24 | 3 | 27 |
| 2017 Febrero | 18 | 8 | 26 |
| 2017 Enero | 15 | 8 | 23 |
| 2016 Diciembre | 19 | 4 | 23 |
| 2016 Noviembre | 16 | 4 | 20 |
| 2016 Octubre | 16 | 14 | 30 |
| 2016 Septiembre | 26 | 15 | 41 |
| 2016 Agosto | 27 | 4 | 31 |
| 2016 Julio | 26 | 4 | 30 |
| 2016 Junio | 8 | 6 | 14 |
| 2016 Mayo | 5 | 8 | 13 |
| 2016 Abril | 5 | 24 | 29 |
| 2016 Marzo | 14 | 9 | 23 |
| 2016 Febrero | 9 | 9 | 18 |
| 2016 Enero | 8 | 13 | 21 |
| 2015 Diciembre | 10 | 1 | 11 |
| 2015 Noviembre | 17 | 1 | 18 |
| 2015 Octubre | 9 | 3 | 12 |
| 2015 Septiembre | 15 | 3 | 18 |
| 2015 Agosto | 11 | 1 | 12 |
| 2015 Julio | 48 | 10 | 58 |
| 2015 Junio | 43 | 13 | 56 |
| 2015 Mayo | 83 | 20 | 103 |
| 2015 Abril | 69 | 15 | 84 |
| 2015 Marzo | 45 | 12 | 57 |
| 2015 Febrero | 27 | 13 | 40 |
| 2015 Enero | 45 | 15 | 60 |
| 2014 Diciembre | 63 | 8 | 71 |
| 2014 Noviembre | 41 | 11 | 52 |
| 2014 Octubre | 38 | 21 | 59 |
| 2014 Septiembre | 32 | 13 | 45 |
| 2014 Agosto | 36 | 17 | 53 |
| 2014 Julio | 45 | 21 | 66 |
| 2014 Junio | 61 | 15 | 76 |
| 2014 Mayo | 68 | 21 | 89 |
| 2014 Abril | 75 | 16 | 91 |
| 2014 Marzo | 77 | 28 | 105 |
| 2014 Febrero | 54 | 22 | 76 |
| 2014 Enero | 52 | 17 | 69 |
| 2013 Diciembre | 52 | 17 | 69 |
| 2013 Noviembre | 36 | 30 | 66 |
| 2013 Octubre | 36 | 20 | 56 |
| 2013 Septiembre | 49 | 37 | 86 |
| 2013 Agosto | 34 | 49 | 83 |
| 2013 Julio | 35 | 47 | 82 |
| 2013 Junio | 28 | 66 | 94 |
| 2013 Mayo | 22 | 30 | 52 |
| 2013 Abril | 31 | 20 | 51 |
| 2013 Marzo | 31 | 27 | 58 |
| 2013 Febrero | 10 | 12 | 22 |
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