Prevalence of Dystrophic Epidermolysis Bullosa in Spain: A Population-Based Study Using the 3-Source Capture–Recapture Method. Evidence of a Need for Improvement in Care

Original article

Prevalencia de la epidermólisis ampollosa distrófica en España: estudio poblacional usando el método de captura-recaptura con 3 fuentes de datos. Evidencia de la necesidad de mejora en la atención sociosanitaria

A. Hernandez-Martína,

Corresponding author

ahernandez_hnj@yahoo.es

Corresponding author.

, B. Araneguib, M.J. Escámezc,d, R. de Lucase, A. Vicentef, E. Rodríguez-Díazg, J. Bernabeu-Wittelh, R. Gonzalez-Hermosai, V. García-Patosj, M. Ginartek, J.M. Mascaró Jr.l, C. Correderam, E. Baselgan, J.L. Santiagoo, A. Chavesp, C. Románq, M. Évoler, A. Martin-Santiagos, A. Torreloa, M. del Ríoc,d..., M. Feitod,e, M.A. Gonzalez-Enseñatf, G. Romeroo, E. Morcillo-Makowt, I. Abaituau, I. García-DovalvVer más

a Department of Dermatology, Hospital Infantil del Niño Jesús, Madrid, Spain

b Department of Dermatology, Clínica Universitaria de Navarra, Madrid, Spain

c Regenerative Medicine Unit, CIEMAT and Department of Bioengineering, Universidad Carlos III de Madrid (UC3M), Madrid, Spain

d Centro de Investigación Biomédica en Red de Enfermedades Raras (CIBERER), Valencia, Spain

e Department of Dermatology, Hospital La Paz, Madrid, Spain

f Department of Dermatology, Hospital Sant Joan de Deu, Barcelona, Spain

g Department of Dermatology, Hospital Cabueñes, Gijón, Spain

h Department of Dermatology, Hospital Virgen del Rocío, Sevilla, Spain

i Department of Dermatology, Hospital de Cruces, Bilbao, Spain

j Department of Dermatology, Hospital Vall D’Hebron de Barcelona, Spain

k Department of Dermatology, Hospital Clínico Universitario de Santiago de Compostela, Santiago de Compostela, Spain

l Department of Dermatology, Hospital Clínic, Barcelona, Spain

m Department of Dermatology, Hospital Miguel Servet, Zaragoza, Spain

n Department of Dermatology, Hospital Santa Creu y Sant Pau, Barcelona, Spain

o Department of Dermatology, Hospital de Ciudad Real, Spain

p Department of Dermatology, Hospital Infanta Cristina, Badajoz, Spain

q Department of Dermatology, Complejo Hospitalario de Salamanca, Spain

r Department of Dermatology, Hospital La Fe, Valencia, Spain

s Department of Dermatology, Hospital Son Dureta, Palma de Mallorca, Spain

t Director of DEBRA Spain, Málaga, Spain

u Rare Diseases Research Institute, Instituto de Salud Carlos III, Madrid, Spain

v Research Unit, Fundacion Academia Española de Dermatologia, Madrid, Spain

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Article information

ISSN: 15782190
Original language: English

DOI:10.1016/j.adengl.2013.03.011

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2023 December	75	22	97
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2023 July	100	53	153
2023 June	88	28	116
2023 May	59	27	86
2023 April	57	21	78
2023 March	74	31	105
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2022 December	55	49	104
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2021 August	57	26	83
2021 July	59	38	97
2021 June	58	35	93
2021 May	74	34	108
2021 April	87	53	140
2021 March	79	43	122
2021 February	77	31	108
2021 January	65	28	93
2020 December	46	33	79
2020 November	33	25	58
2020 October	59	26	85
2020 September	30	23	53
2020 August	33	17	50
2020 July	63	22	85
2020 June	44	20	64
2020 May	42	39	81
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2018 October	2	0	2
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2018 May	0	4	4
2018 April	0	1	1
2018 March	8	0	8
2018 February	53	4	57
2018 January	35	13	48
2017 December	40	8	48
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2017 October	34	4	38
2017 September	22	25	47
2017 August	33	12	45
2017 July	34	13	47
2017 June	41	35	76
2017 May	21	19	40
2017 April	24	17	41
2017 March	17	19	36
2017 February	33	15	48
2017 January	41	19	60
2016 December	55	9	64
2016 November	46	10	56
2016 October	45	24	69
2016 September	83	18	101
2016 August	73	13	86
2016 July	37	2	39
2016 June	5	5	10
2016 May	10	4	14
2016 April	10	5	15
2016 March	11	10	21
2016 February	13	1	14
2016 January	10	13	23
2015 December	13	15	28
2015 November	5	12	17
2015 October	5	9	14
2015 September	4	8	12
2015 August	7	3	10
2015 July	25	6	31
2015 June	16	5	21
2015 May	38	5	43
2015 April	23	4	27
2015 March	13	7	20
2015 February	15	4	19
2015 January	11	5	16
2014 December	11	2	13
2014 November	7	5	12
2014 October	15	8	23
2014 September	5	4	9
2014 August	7	5	12
2014 July	6	6	12
2014 June	17	6	23
2014 May	14	9	23
2014 April	9	4	13
2014 March	10	4	14
2014 February	9	5	14
2014 January	6	3	9
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